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May 2008 One of the hardest things to deal with (this spring) has been how to justify taking all this medicine when I feel just fine. And how to keep the new plants alive, but that’s for a different diary entry. I’ve been hearing about the importance of taking meds on a regular basis for years. The same years I badly needed to take medicine to stand upright and function normally. Lately…knock-on-wood…I feel pretty good, and I look at the pill case and I wonder why I’m downing them by the handful. Here’s why: that’s what got me here. That handful of drugs which taught me to swallow up to 8 at a time (a useful party trick) have been my so-called lifeline since my chubby cheeks, awkward voice and multicolored braces. That pharma-tini cocktail has kept me the life of the party. Two days ago I fell through the crack between the subway car and the platform. Yes I did. So much so that two (large) men hoisted me up and out before my brain could account for what had actually just happened. I was stepping off the train backwards (rush hour makes for some awkward strap-hanging!) and boom! There I was, up to my waist in subway car and subway platform. Mind the freaking gap! But here's the rub: at the time I wasn't hurt (except of course embarrassed to no end and badly stained with subway dirt), but I knew I hit my knee on the platform. And today, 48 hours later, "no more stain, just the pain" - my knee still hurts! I don't understand how a little subway "love-tap" could cause me to feel it (considerably) all this time later. And yet it does. C'est la vie? More like c'est l'arthritis. |
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 Creaky Board
 Feature Feedback
 Seth's Diary - May 2008
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| Author | Topic: Seth's Diary - May 2008 |
| CJ Feature Staff |
posted 05-05-2008 09:16 ET (US) 
This article is for responses to Seth's May 2008 entries to his diary. http://www.creakyjoints.com/sethsdiary/200805.shtml |
| Beverly |
posted 05-05-2008 22:04 ET (US)
Hi Seth, I recently questioned the meds I was taking for the same reasons...I was feeling well. Since I felt Enbrel was my "miracle drug" I was conviced that mtx was no longer necessary. After a few weeks without the mtx, (my rheumy let me experiment), the harsh reality hit. I am only doing well because of the meds I take. I think I needed to feel it (in my joints) to convince myself. So many of us are walking "chemistry experiments", swallowing and injecting an ever expanding list of meds that make up our unique "cocktails". It is only when we are truly lucky we find the right mix that works. Thanks for sharing the Infusion Video with us. (I too am followed at HSS) Beverly |
| karomaka |
posted 05-13-2008 20:38 ET (US)
Hi Seth, first I want to thank you for this web site. this is my second day and I can tell you I have learned alot already. Second I can really relate to not wanting to take the meds. Last year I went through my third surgery in 3 years and I was taking all these meds for my RA and even for the pain and none day I was in pain and still swollen so I said why take these meds they don't work. I went off for over 6 months before I could admit that I was so bad I needed to tell my doctor what I had done and to this day I am still trying new cocktails and am the worst I have ever been in the years since I had been dx. So if anyone reads best advice to anyone listen to your doctor and hang in there the alterative is much worse. thanks again K |
| Seth |
posted 05-17-2008 15:12 ET (US)
Welcome to the party. No need to kick your shoes off. Only if they're wet. |
| LLave |
posted 05-20-2008 21:43 ET (US)
Dear Seth, When I read your post, I literally gasped and noticed I was clutchng the nape of my sweater. Good God man!!! You're actually wondering why you still feel pain??? Honey you are so lucky you didn;t do serious damage- I felt virtual pain on your behalf, friend. I think this illustrates the strength of where you are right now- I'm totally amazed that you rebounded so quickly. I mean it is a pretty substantial fall by any measure- I'm really glad you fared (no pun intended) so well and it didn't take you off track. Sorry, I' can't help it. You said you're feeling much better and questioned why down the handful of meds... Me too... I just started to feel stronger than the grip the RA had on me. HAH take that! The worst of this unforseen experience is now receding to a place in the past. I think I'll pay heed to everyone's experiences and stay on my meds... my awesome rheumy just told me the same thing... Take care and yes, Mind The Freaking Gap!! |
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