A note from CreakyJoints co-founder, patient advocate and fellow arthritic Seth Ginsberg...
I am proud to introduce CreakyJointsPRO: an initiative that we have engineered for the world-wide arthritis community, with the goal of understanding how to cope better, and hopefully, find a cure for our arthritis.
In 2014, CreakyJoints embarked on the most ambitious arthritis research project in the world, aiming to encourage everyone, everywhere, who is part of our enormous community, diagnosed with arthritis (of any type), to provide input about how we’re feeling, what we’re going through as patients, and what we want studied in the future.
With this information, which will be kept private, anonymous, and securely encrypted by our organization, the world’s smartest researchers and best medical institutions will learn from all of us living with the more than 200 forms of arthritis. This is how we will accelerate research and breakthroughs. By painting a better picture of our lives with arthritis.
We need your help. Not financial help – we will never, ever ask you for money – instead, just your participation which will require a few minutes on occasion filling out specially designed questionnaires about living with arthritis, how it impacts your life, what you’re doing to manage it, and what you need to feel better.
Plus, when you become a CJPRO —“PRO” stands for “patient-reported outcomes”— you will allow us to customize your CreakyJoints experience, tailoring news, alerts, info and other opportunities just for you. Best of all, you will be the first to learn what our research team concludes, especially translated into terms that are easy to understand and applicable to your life.
Just imagine what it will be like to learn how tens of thousands of other people just like you are doing to cope with their arthritis. That is the power of CJPRO.
This is our global effort to eradicate arthritis. Let’s get started.
To Good Health,
Chief Arthritis Officer, CreakyJoints