New - Here's My Scoop

Hi Friends,

I am 27 and was diagnosed w/ RA two years ago.  Prior to diagnosis I went through years of meds, docs and procedures to determine the cause of my pain.  Looking back I believe my first symtoms were at age 15 when I underwent bilateral knee surgery that was dubbed unsuccessful.  Since diagnosis I have been on anti-inflams, pain killers, Plaquenil and Humira.  I never saw improvement and sometimes even question my diagnosis.  A bone scan w/ many many "hot spots" was the rhemy's deciding factor in diagnosing me w/ RA (though he toyed with undiff spondy).  I stopped taking drugs to have a baby but now it's time to get back to fighting this thing.  I have to find a new rheumy b/c I was never thrilled with mine and very dissatisfied how he handled my care during my pregnancy (which was a rough one, no remission for me..only increased pain and lots of bedrest...but ultimately a happy healthy baby so I am blessed).  I read about CJ in the recent issue of Parents magazine as I was trying to focus on being a happy new mother and trying desperately to ignore my pain and the task ahead of me...regergitating my history and reliving the last 6+ years to some new rheumy whom I may or may not like.  I think b/c I haven't yet experienced relief it's making me delay the search, not wanting to go back to months of meds and 'why aren't they working yet?'  I have ok days and bad days that I've handled pretty well, but the thought of not being able to keep up with my daughter as she grows and my husband as we grow together burdens me every day.    

I'm not one to openly complain (as most RA patients probably boast) so I'm merely looking for some friends and a place to gain some inspiration from other strong individuals.  Thanks and I look forward to visiting with you all!       

JessieLou,

First Welcome to Creaky Joints, you have found one of the best support boards for RA out there. Second, Congrats on the new baby and best wishes moving forward. Children are a blessing.

I have had RA for the last 34 years, and there are others here that have had it longer or as long and some that have been recently diagnosed and we all share our experiences.  We look forward to you doing the same. 

You are 100% correct most of the RA folks hardly ever complain because it is a "pain" no pun intended to explain it. Especially since it is one of those INVISIBLE diseases.

Once again welcome and we look forward to your postings.

Tess