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G'day everyone :)

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G'day everyone :)

Posted by Ozziegurl at November 11. 2008

Hello, I am a forty something wife and mother with RA, Lupus and Fibro, just came across your site and thought it looked like just what I need, look forward to having more of a sticky beak about the place and getting to know you all more :)

 

Cheers!

Re: G'day everyone :)

Posted by Carolan Ivey at November 12. 2008

Hi Ozziegurl!

I'm in the US but have several author friends who live in "Oz". Welcome!

Re: G'day everyone :)

Posted by bigted at November 14. 2008

Welcome Ozziegurl!  Come by anytime for beak and take part in the board.  I'm in Canada.

bigted

Re: G'day everyone :)

Posted by kate at November 14. 2008

welcome! :)

Re: G'day everyone :)

Posted by TessaD at November 14. 2008

Ozziegirl, Welcome to Creaky!!

You wont find a better group of friends and others anywhere.  The folks here are honest and friendly, supportive in everyone anyone could ever imagine.

We have folks from all over the USA, Canada, UK and other countries so come on aboard.

Don't forget to hang out with us in the remission zone for the Creaky Pub Crawl were we are virtually touring the world in search of a cure.

Re: G'day everyone :)

Posted by Ozziegurl at November 18. 2008

Thanks for the welcome everyone :)

Re: G'day everyone :)

Posted by Renee' at December 19. 2008

This is a fun and caring group, indeed!  Welcome aboard!

Renee' (Florida, USA)

Re: G'day everyone :)

Posted by Barbara Berndt at December 31. 2008

Although I have browsed and appreciated  the newsletter for several years, I have never posted anything before.  Mostly retired now from teaching French, I would like to do more traveling but have not figured out a way to be be away without my Enbrel for more than two weeks maximum--and that is pushing my luck.  One of my brothers lives in MX and I have a lot of friends in France. 

When I was still working, I would take student groups for two weeks but found that the travel coldpacks with icepacks were not really adequate to keep the temperature cool enough for trips that, door to door, were never less than 12 hours and could be much more if there were delays.  So although I once tried taking the Enbrel with me since 2001, I was afraid to inject when I saw that the temperature had exceeded 40 degrees on the thermometer packed with the meds.

Does anyone have any suggestions?

bises

 

 

 

 

 

Re: G'day everyone :)

Posted by TessaD at December 31. 2008

Barbara,

When you travel with the ice packs are you traveling with a small cooler also?  I would contact the mail order pharmacies and see where you can purchase their ice packs; they ship mine and it stays cold enough for over 24 hours. I just threw my last one away so I don't have it here to get the name or manufacture from it.  If you are not traveling in the next several months I can send you the small styrofoam cooler and the ice packs I get with mine. 

Folks travel with insulin all the time sometimes touching base with the airlines security departments might be able to help. 

good luck and happy traveling.

Tess

Re: G'day everyone :)

Posted by kate at December 31. 2008

I use a little cooler the Enbrel people gave me, with a blue ice pack and it works pretty well- you can even keep a couple of blue ice's in there. No one's ever given me any trouble at the airports since its pretty obvious it is medication. I do ask my doctor for a letter saying i need my mtx syringes though.

 

Also- I will say this... I guess this is an anti-recommendation for a product- do NOT buy these things, they sound awesome for travelling but they are completely useless (if anyone doesn't believe me, I'm happy to send them the one I wasted my money on! ;). I found them on the internet when I was going to Japan, and they're no good.

http://www.friouk.com/

Re: G'day everyone :)

Posted by Rachel at January 01. 2009

i have travelled with a mini freezer bag with lots of frozen icepacks in it and it has stayed cold for hrs and hrs.

HOwever, i did have a problem getting through security (out of UK) even though i had spoken to airline and had drs letters. They wanted to take it away from me (!!!!!) but they called over a rep from the airline i was travelling with who looked it up on pc and said it was fine....

i would reccommend confirming with airline -  u never know how moody the security ppl will be....;)

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