still not well

So .. here I go again... I had my shoulder surgery in October and then the liver tests came back pretty elevated. I thought that I might be on my way to recovery but then something comes up again. My last liver tests were still elevated (done on dec 19th) but they were coming down. I have had one dose of my remicade. Rhemy said that I could take mtx 2 weeks after my dose of remicade. I had one dose (8 pills) on the first saturday in December but had such a terrible stomach pains that Rhemy said to stop again. I am due for the next remicade dose the first week in Jan but the stomach pains never went away. Last week I started with the worst back pains I have ever had. Finally went to see my GP. He does xray's (lots of arthritis- oh really!) nothing else. Labs he did were for pancretitis (?spelling) Amylase was 269 and Lipase was 186 five times the normal. But not sure if it really is pancreas. So tomorrow I go to get a CT scan of liver and pancreas. I still am not on all my meds (off for over 2 months) the pain is so bad I don't have any idea how I even get up in the morning. If anyone has had any problems with their pancreas or any other ideas please I am deperate. 

thanks again for listening I am so lost as to where to go from here and what to do. I hope everyone's holiday's were wonderful. Here's hoping the new year will be better

Kelly

Kelly,

I am so sorry you are going through all this. I haven't experienced any of what you have described but you are in my thoughts and prayers that it all comes out okay.

Your friend

Tess

Thanks Tess,

I had a pancreas biopsy done this morning when the labs came back abnormal again my doctor ordered a CT scan to be done and they found a mass on my pancreas. ( I have not had the courage to say the "c" word but ...) It will take a couple of days to find the results out. I will let you know as soon as we get them back but it looks like I am in for the biggest fight of my life....

I keep you all with me in my prayers,

Kelly

Kelly,

I am so very sorry to read about the ordeal you have been going through.  I do hope (and pray) that the mass turns out to be something innocent.  I will keep you in my thoughts over the next few days, and hope your future postings bring only good news.

Beverly

Kelly,

I am so very sorry to read about the ordeal you have been going through.  I do hope (and pray) that the mass turns out to be something innocent.  I will keep you in my thoughts over the next few days, and hope your future postings bring only good news.

Beverly

Well the results are in and of course are not what we wanted. I have pancreatic cancer. I now get to start treatments and tons of doctors appointments. The first stop is to see oncology (Jan 14th) and we go on from there. I guess they did not catch it very early found some spots on my liver and my kidneys (although not sure if it is also cancer or not) I don't know where to even go from here but the doctors will probably help with all that. I have not been given a "time frame" and I am not sure I really want one. We will live each day and cherish every memory.

I wish everyone a pain free day,

Kelly

Kelly,

First my prayers are with you and if you need to chat please let me know. My father had advanced stage 4 pancreatic cancer before it was diagnosed. I have done a lot of research on it and have a slew of websites and information that I get sent to you.  What ever you need please let me know. 

We are all here for you!!  You are taking the right approach on living each day and cherishing every moment because that is life is really about!  We all lose perspective of that from time to time and remember we are here for you!!

Tess

Oh Kelly, I am so sorry for what you're going through! If there is anything you need, just say so, and I am going to be thinking about you!

Dear Kelly,

I am so terribly sorry to hear your news.   I'm afraid Tess had to pass on the bad news as I haven't been keeping up with everyone as much as I should and recently have only been skipping through a couple of subjects on Creaky.   I wish it wasn't something like this that has to remind me to check in with everyone more often and offer the support that so many others already do.

I'm pleased to hear that you got to chat direct with Tess as I find her an incredible support, it's a gift that she has and I believe that she really is a great friend to have around.

I do hope that you receive great support from these boards and that you keep us all up to the minute with everything.   It's just such a shame that we aren't all living close by as I think that we'd all make one hell of a group of friends and a force to be reckoned with.

You are in my thoughts and I just wish I could offer more support somehow.   You never know, even though I'm in the UK there may be somthing that you can think of where we could all help either individually or as a group.

Take care Kelly.

Dozey Rosey..

Kelly, I'm so sorry you're facing this battle. We're here for you, you only have to ask and we'll do whatever we can for you. I've heard recently that there have been some great advances in treating this type of cancer. There is always hope! My email is carolaniveyATyahooDOTcom, ping me any time! [[hugs]]

Thank you all for the support and prayers. I will take them all, as you can never have enough prayers. This is the reason I posted this was the support of friends is so great that I can only do better because of it. I know the days coming will be hard at times but I have a wonderful family and such terrific doctors how can I not get better. I will try to post as much as I can in the coming days but not sure what treatment plans will bring.

Thanks Tess I will read as much as I can, I know information is the best treatment (just as we know about RA)

I have much to do in the next couple of years so there is no way I will give up! I find the hardest thing is to take things slow. One day at a time will be my motto now which is hard when I have always lived more in the whats next in the years to come. I will talk to you all soon.

Kelly

Dear Kelly,

I am so sorry to hear this news, Please keep us posted!!! We are your cheerleaders and confidants...we are here for you!

God bless,

Carol

Dear Kelly,

I kept hoping that the mass was innocent and no cancer would turn up.  I am so saddened to hear your news, but we are all here to support you because we are your (creaky) family.  Carolan is right.  There is always hope.  For the people I have known in very similar situations, I have learned it is positive outlook, determination and support of loved ones that make at the difference, to power past the prognosis and so called "time lines" of doctors.  I do not consider my self an especially religious person, but I have witnessed the power of group prayer in overcoming seemingly insurmountable odds when it comes to cancer.  I know you said it wasn't caught very early, but since your blood levels are monitored so closely, perhaps it was caught earlier than it typically is, and that will work in your favor.

I will keep you in my thoughts and prayers

Beverly

Dear Kelly,

After reading about what's been happening with you here on the board, I felt compelled to write and tell you how deeply I felt your story.  Even though I don't know you in person or even via these postings, I wanted to let you know how inspirational your words are to me.  In the midst of all your struggle and personal pain you have so much positive energy to share.  I'm sure everyone who reads your words finds you to be a very brave women.  I just wanted you to know I think your outlook is amazing and absolutely inspiring and wanted to say thank you for that.  I'm sending you a strong, very warm hug, lots of good thoughts and peace.

LLave

Dear Kelly,

I am so sorry to hear of your new battle.  I hope I can pass along some strength that you and your family are going to be in need of to fight this.  Please stay positive as this has such a large impact in our health and our abilties to fight disease.  Although I have been absent Tess has kept me up to date (she is such an angel) and you have been in my thoughts frequently.  I hope you keep strong and stay in touch,

bigted

Thank Bigted, I don't look at myself as an angel. Just someone that cares about everyone here.   We are a unique group of people that do not have it as easy as others. I guess it is my Motherly instincts always kicking in to worry about everyone.

Unfortnetly I have not seen Kelly online in awhile though I do have her email address so I will drop her a note and see how she is doing, providing she responds.

Kelly if you are keeping up we are all praying for you and concerned.  Please keep us informed about your progress.

Tess

CJ Friends,

I had to the opportunity to chat with Kelly online today.  She states she is doing okay and is on chemo/radiation she is handling it well and is hoping for the best.

She wanted me to thank you for all your thoughts and prayers, as well as all the support we all have shown for her.  Kelly will try to come to the board in the near future.

Kelly thanks us all.