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The Step After Dating ...

Last time I wrote about dating and arthritis. This week, I came across two different articles that address the next level of a relationship when you have arthritis -- sexuality and intimacy.

In the September/October issue of Arthritis Self Management, Victoria Ruffing R.N. writes an excellent piece titled "Intimacy." She begins with the premise that "feelings and attitudes toward sex are quite complicated."

Well, yeah. But she goes forward in a clear and thoughtful way to discuss communication, setting the stage, the power of touch, medicines and more, and comfort.

I found her suggestions to be useful and hopefully easy to do.

For instance, in the communication section she advises getting clear about your own needs and desires. She asks readers to examine their own attitudes before addressing their partner.

Questions like:

  • "Do I react negatively when my partner wants to have sex?"
  • "What are my preferred sexual activities?"
  • "Am I willing to try new positions that will put less stress on injured or painful joints?"

She offers advice that may seem simple -- "take advantage of your good days" -- but we often haven't thought of it.

Make sure you are warm and that your environment is warm -- take a bath or shower, warm the bed with an electric blanket or flannel sheets.

Check the side effects of your medication -- and if that is contributing to your problems, speak with your doctor or rheumatology nurse.

Ruffing's top item is to "make yourself comfortable" and she gives many specific positions and suggestions so that you can "enjoy the journey!"

I encourage you to seek out this article.  (Available in the Sept./Oct. Arthritis Self Management magazine at your local library or bookseller, or by ordering online at www.arthritisselfmanagement.com.)

Another article had a slightly different perspective to offer. It was less about the practicalities, and more about research into chronic inflammatory disease and sexuality.

Most of the research in this area is conducted by assuming there are problems. Checklists are constructed and answers are limited to questions that deal with problems.

A different kind of research was done, asking women to describe the sexual effects of their illness in their own words.

A surprising finding was that some women found improved sexuality and relationships, even as they dealt with physical and emotional issues. The researchers posit that these positive sexual outcomes are important to note and explore further. [The study was done by Arno Karlen and published in Sexuality and Disability, Vol 20 (3), Fall 2002, 191-208.]

This stimulated my imagination because it helps focus on what some of the upside of these painful chronic diseases may be. Perhaps increased tenderness and a willingness to take time is part of the improvement.

Someone who is ill may find their partner really is caring and attentive, which improves communication and trust. Other benefits may be a deeper closeness that comes with fighting a battle together.

I am interested and wonder if any of you can expand on these findings with your own story?

I'd love to hear -- and I'm sure other readers would, too!

 

To send Dr. Laurie your thoughts:


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Mighty Endorphin Power Rangers

Posted by Renee' at Nov 02, 2008 01:23 AM
Dr. Laurie said everything that makes sense to us, but I wanted to add one note. While it may not help with (ahem) logistics, but rather the reasons to give it a try. And I'll try to put this as delicately as possible to protect anyone's sensibilities...
When someone is having a REALLY GOOD TIME, the body releases endorphins, or naturally occurring pain relievers. In some individuals, these endorphins are as powerful as morphine- others, not so much. And what coems as an additional relief, these endorphins are comepletely free and do not require a 'scrip!

Mighty Endorphin Power Rangers

Posted by Dr. Laurie Ferguson at Nov 03, 2008 02:13 PM
Thanks Renee! You said it perfectly..!

Additional Syndromes

Posted by TessaD at Nov 03, 2008 07:30 PM
Dr. Laurie and Renee pointed out is so accurate there isn't much more to add!

Some of us also suffer from other syndrome's that cause additional complications to intimacy, Sjrogren's which is where you glands are attacked by your immune system. What I have found that really helps is to shower right prior to any type of intimacy, it relieves the stiffness in the joints and I add additional baby oil to my skin in order to have that softness. By stock in the maker's of KY Jellies and the one I find that helps and works to add some assistance is the His/Her's. It has a warming effect that helps with the relaxation. The warming massaging jellies actually add some added warmth to the joints if used to caress your body also.

I do apologize if this is a bit too much information though wanted to share some of the many things tried over the years to make it comfortable.

We use multiple pillows for comforting the particular tender points of each joint when necessary. Me as the RA patient also need to communicate to my partner that it is okay, and let him/her know which joints are sore at that time, and comfort them that it is okay to proceed and give them the confidence that I will not break. Just be open and honest on what works what doesn't.

I saw a book on this very subject and will get the information to Dr. Laurie when I dig it up again. (It might be the same article she is already referring too.

Personally, I do not let these diseases control me, I try to take control. Sometimes it wins, sometimes I do. Though it is a matter of positive attitude towards it when discussing intimacy. (It should be a tender moment so my partner and I treat it as a tender activity).

Additional Syndromes

Posted by Dr. Laurie Ferguson at Nov 03, 2008 09:32 PM
Thanks for your frank and helpful comments Tessa- I believe the more we are willing to share, the more we aren't letting the disease win!
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Dr. Laurie Ferguson

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Dr. Laurie Ferguson
A health psychologist, motivational speaker, Presbyterian minister -- and CJ friend since our inception 10 years ago.
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Dr. Laurie Ferguson

Location: New York, NY
Dr. Laurie Ferguson
A health psychologist, motivational speaker, Presbyterian minister -- and CJ friend since our inception 10 years ago.